Tobii Tip: Eyes

The Tobii eye gaze technology (EGT) does not work well on dry eyes. I’ve been using EGT for almost three years now, and in that time, I have unintentionally trained my eyes to stay open for long periods of time. My guesstimate is that I can go up to three minutes without blinking – this is a conservative judgment on my part; I bet if my eye movements were scrutinized under laboratory conditions, the time elapsed between blinks would be much higher. This is not a good thing.

Dry eyes will play havoc with Tobii’s EGT confusing the infrared sensors’ targeting mechanism. You think you’ve got a good calibration and you’re chugging along hitting all your targets, then your cursor starts to dart all over the screen selecting every item but the one you desire. Before you have your caregiver throw Tobii out of the window, close your eyes and count to ten. In most cases, this will take care of the problem sparing you the tedious task of recalibration.

Also, remember to take frequent breaks from your Tobii: this can range from closing your eyes for five minutes or shifting your gaze to something other than your Tobii screen. Following these actions can help with eye fatigue.

Copyright © 2016 Kipling A. Jackson

Tobii Tip: USB Ports

The snazzy Tobii Dynavox I + Series  speech generating devices (SGD) come equipped with 1 USB 3.0 port and 2 USB 2.0 ports for a total of 3 USB ports (my older model comes with these same ports). Yee-Haw!

Wait a  minute, Sir Kipling, why are you so excited about this? It means nothing to me.

Okay, okay, let me explain. The presence of these ports means you can attach an external device to your Tobii. Cool! You can download photos from your camera, phone, tablet, or video camera – and much, much more.

Upset that your Tobii device doesn’t come with a CD/DVD player? No problem. Go to Amazon and purchase an external player (cost around $25 for a good one) and play your favorite movies (or porn, you Sickos!) till your eyes bleed.

Staying up at night wondering how in the Hell you are gonna place your extensive iTunes library (mine is 110 gigs) on a 120 gig hard drive and still have space leftover? Simply go to that magical website, Amazon.com, and purchase an external hard drive (a 1 Terabyte hard drive costs around 60 bucks; 1 TB = 1000 GB or gigs). Whew! Now that’s a lot of memory. You can keep your music, movies, and those freak-nasty, skin-slapping nudie flicks that you’ve been hiding from your spouse (Ya Prevert!) stored on these hard drives. Better yet, you can hook up the drive via a USB connection to your Tobii and listen or watch it on your SGD without having your files take up valuable memory on your Tobii.

Until next time, Happy Tobiing!

Copyright © 2016 Kipling A. Jackson

Bad, Bad, Bad

Sorry, folks. After reading what I thought would be the final version of my story, I cannot bring myself to publish it. I’ve always joked about my writings being my own contribution to bad American literature. But, this story is terrible and, as a result, I have condemned it to my literature Purgatory – a vast wasteland filled with past ideas and writings wondering about awaiting their fate.  Will they be resurrected and given a new life, or will they be tossed into the fiery depths of my memory to be obliterated from existence? Only time will tell.

Alas, I cannot, in good conscience, take your three bucks for what I have marked as an inferior product unfit for public consumption. The good news is that Kroger has a sale on cottage cheese this week. You guessed it, a 16-ounce container is going for just a little under three dollars – much more fulfilling instead of settling for my cheese.

Copyright © 2016 Kipling A. Jackson

 

 

Watching You

“Watching You”, my new story, will be released on Friday, July 31st, 2016. It will be available in paperback and as an audio book – these formats will not be ready for purchase until late July or August. However, you can pre-order your ebook copy on Amazon.com now. Just click on the icon to the right.

Don’t have a Kindle? No Problem. Click on this link to download the free Kindle app.

http://www.amazon.com/gp/digital/fiona/kcp-landing-page?ie=UTF8&ref_=sv_kstore_4

Do you remember your first crush, most everyone’s had one, right? You remember feeling the warmth in your heart and your face flush bright red whenever you saw that one special person. Then, if you were lucky, they flashed you a smile, said “Hi”, and from that moment on you were hooked. You would do anything, it seemed, to make them acknowledge your presence. This would range from hours spent in front of the mirror debating with yourself about which outfit looked the best to instructing your goofy parents to drop you off far away from the school entrance so that no one could see you getting out of the family van (No, mom, I won’t kiss you goodbye!). The crush was a hellish roller-coaster filled with days of euphoria when your obsession noticed you and intense depression – even anger – when you’re ignored.

When you finally got home from school that day, you found out you couldn’t concentrate. Homework be damned, you had more important problems to deal with than figuring out what x was. Lying awake in bed, you didn’t fall asleep because you were too busy wondering what you did wrong.

Before class the next day, you discovered the reason you’d been overlooked: they were hanging out with their special person. Your heart was crushed by the sudden act of betrayal. Like most kids, in time, you would recover and go on with life.

You never forgot about the classmate who refused to accept the rejections. You remember hearing the rumors of a couple of stays at a psychiatric hospital. What happened to him? In today’s world,  information is so easy to come by, so you grab your smartphone and look him up. There, before your eyes is a picture of him; he seems to be well-adjusted and, judging from his clothes, you know he must be successful with his career. The images make a believer out of you, and you think he’s left those dark days far behind. But, your wisdom gained over the years interjects and tells you the pictures don’t tell the whole story –  they only show what the person wants you to see. Then you begin to ponder: what are they hiding? After all, everyone has their secrets.

My Sweetest Love,

Tonight, I sit here watching you in this busy restaurant laugh and gossip with your friends. You have no idea that I’ve followed you here. Except for a few fleeting encounters, my existence – in your eyes – remains, at best, a trivial one. I’m not a part of your world, and it seems like you don’t care. It drives me insane.

No one can ever love you as much as I do. I will never hurt you nor do you have anything to fear from me. I am your lover, protector, and savior. Why can’t you understand this?

I do have a confession to make.  I’ve been observing all aspects of your life to see what I can do to be a wonderful, future husband to you. I make sure I’m the first person that sees you in the morning. I’m there to welcome you home at the end of your day. I watch TV with you – your shows have now become my favorites. And when you go to bed at night, I always make sure you’re tucked in and safe. You see, I’m already a big part of your life, and you don’t even know it.

The possibility of living without me is not an alternative I want you to consider. Therefore, I’ll take responsibility and eliminate this as an option. You belong to me, and I shall stop at nothing to see this through. I won’t live without you, and I’ll make sure you’ll never live without me – that’s a promise.

Until the day you finally accept my everlasting love and devotion, I’ll be watching you.

Eternally yours,

J.

 

Thank You Notes

In honor of this being Friday, I will do the Kip’s Krusader version of Jimmy Fallon’s “Thank You Notes.” And without further ado:

Thank you, caregivers, for holding conversations while transferring me to my wheelchair oblivious to the fact that certain “things” hang low during the transfer process.

Caregiver 1: “Oh, you say there’s a bra sale at Lane Bryant’s?”

I start feeling light-headed.

Caregiver 2: “Yeah, 40% off! Lasts till Saturday.”

A cold sweat breaks out on my forehead.

Caregiver 1: “Wow! That’s a great deal! Mine are worn out, the wire is coming out and everything – ”

My vent alarm goes off.

Caregiver 2: “Why is his face all purple?”

Caregiver 1: “And why are tears streaming down his face?”

I’m thinking, thank God, they finally noticed me. I look down at my crotch hoping they will interpret my eye movements.

Caregiver 1: “You need suction?”

My eyes say no.

Caregiver 2: “You need to be burped?”

What! Aw, come on, guys. Y’all know this one, we’ve only been doing this for three years. Again, I look at my crotch.

Caregiver 2: “Scratch your feet? “

No, no, no and NO! My ball sac is twisted like a pretzel and my ‘nads are squashed beyond recognition!!! Father, please forgive them for they have absolutely no clue as to what is going on… I look down at my crotch for a third time. Their eyes follow mine down and a look of clarity washes over their faces. Divine intervention has arrived. One hand reaches down and searches. It seems like an eternity. Come on, I’ve got a Caitlyn Jenner tuck job going on down there. Oh, for the love of God, what is taking so long. Finally, her hand finds purchase, she pulls…  Ah! My vision returns to normal and my vent’s alarm shuts off. All is right with the world again.

Road Trip

We took a short road trip to the lake house. My thoughts:

I fell in love again today. I rediscovered God’s incredible creation.

My senses absorb the luscious green of trees and vegetation as we travel by.
Eyes slow down the motion, inspecting every tree, drinking in every ounce of beauty.
I dream of running through the spacious grassy pastures,
Climbing up the rolling hills and tumbling down the other side,
With fresh grass in my hair, I pick the yellow and white wildflowers under a rich blue sky.
And the sky, oh so blue, I never knew how much I have missed you!
Clumps of yellow and white in a sea of green underneath a never ending blue.
A warm, delicate breeze blows softly through my hair,
Picking up the sweet scent of the bouquet, I breathe in deeply.
Tears stream down my cheek because I feel my God’s love,
There is no doubt, I am in His presence.
I realize that one day this dream will come true. 

Y’all have a safe weekend!!!
Kip

© 2014 Kipling A. Jackson

I KNOW, I Know, I know…

I KNOW, I Know, I know…

I’ve been away for a while. But now I’m officially “retired” from work. No more STRESS!!! I’m really gonna miss the people I work with.

I’m trying to get organized and set up in my home office. Dad has built me a huge desk with lots of room underneath for the wheelchair. It has an L-shape to it and will take up a large part of the office. I want it to be a one stop entertainment shop. I’ll have my PS3/Blue-Ray player, my computer, my monitor, a dvd player, and my stereo on it.

I will be doing a HELL of a lot of writing. Side note here: it’s amazing how fast the day goes by when you’re watching TV. So now that I have caught up with my favorite TV shows, it is now time to be productive.

This blog will be about my experiences with ALS (as I write this, my left hand doesn’t want to type). We’ll talk about how beautiful life really is. I’ll put in some snippets of short stories I am working on as well as other writing projects. And then sometimes, I will just talk about stuff – there’s a lot of “stuff” out there so be warned. I think I will enjoy writing on this blog because it will give me a break from the formality and restraint of what I hope will be very well-written prose. I’ll try to make my grammar proper in this blog but I’m not promising nothing (how’s that for a double-negative).

I am excited about “retiring.” I really do believe my best days of life both spiritually and creatively are ahead of me. ALS will take away my ability to move, it will take away my smile, it will take away my breathing, but this disease CANNOT TOUCH MY SOUL!!!! It cannot touch my ability to love and to be loved. It cannot touch my passion for reading and writing. It will not touch my obsession and love for music. I will not give up. I will fight to the very last. There is so much to live for! And I will live each day to its fullest.

I love you guys! Thank you for your support!

Kipling A. Jackson

Almost Ten Years

It has been almost ten years since my friend Chad Buckley died from brain cancer. His obituary with his picture is still tacked up on my writing desk. I draw inspiration from it and am reminded that he never complained no matter how much pain or disability he faced. I also am comforted by the fact that he is looking down on me right now and will take care of me. One of his favorite phrases was “Carpe diem.” It’s true, we should all “Seize the day” and enjoy every moment of it. Love you, brother.

Kipling A. Jackson
2/8/2013

Here is a poem I wrote right after his death:

Chad

Through His arms, and
Into His Kingdom,
Our God welcomed me.

All at once, I saw the true meaning of existence,
I knew this was the answer.
For if all could see what now fills me,
No one would dare to offer resistance.

It wasn’t so plain to see,
Through all of life’s pain and misery,
But now it is so very clear to me,
Because now my soul is truly set free.

I now sit here among the stars,
Watching all of you from afar.
Wondering why it is so hard for me,
To understand why you don’t know what I easily see.

It seems to me,
Why all of you do not care to see.
It’s the destination all of you seek,
Not the meaning of the journey.

“Carpe diem!” Dear friends,
Don’t let the instant pass.
Capture the moment and make it last.

Kipling A. Jackson
9/25/03