Who is Kipling A. Jackson?
You sure you want to ask this question?
I have been living with Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s Disease since the summer of 2011. It all started with an uncontrollable twitching of my left index finger. I thought it was cool at first: a new party trick that I could impress my friends with. After a couple of months and a couple of nasty falls, I suspected there was something wrong. This was the beginning of the long trek towards a diagnosis. I had no idea I would end up being afflicted with a terminal disease. Sucks…
Today, I am a quadriplegic, fed through a feeding tube, ventilator dependent, and trached. I can’t talk, swallow, or smell (this has turned out to be a blessing in disguise). Despite this, I am the happiest that I have ever been in my life.
This blog will present a different perspective on life with ALS. You will find out exactly how different my viewpoint really is. Some of you will be appalled at my opinions and run screaming from this site cursing my name and the day I was born. Then there will be some of you who will hopefully embrace these posts and hold them close to your heart.
One more thing before I go, I’m a huge Texas Rangers baseball fan and l absolutely despise suffering from a disease named after a New York Yankee. So, I will never ever refer to ALS by that other name again. Thanks to the Ice Bucket Challenge I have this luxury. Every time that other name is used, know that I am cringing. I mean no disrespect to Mr. Gehrig’s memory; he was a fantastic ballplayer – one of the best ever.
ALS has taken away my ability to move and breathe but it cannot – I refuse to let it – touch my soul.
Y’all be cool…